Wednesday, September 11, 2013

Holding the heart of darkness

I'll never forget the moment in late July that I found out my melanoma was back.  It seems like a lifetime ago, and yet it was only a month and half according to my calendar. On that day, I was on the second annual Father-Son Extravaganza, up in the mountains outside of Leavenworth. On this trip, we do a combination of manly activities (axe-throwing, BB-gun shooting, sling-shots slinging, river rafting, and similar activities) that would interest boys ages 3-11. We camp in a meadow on 50 acres of private property, align our tents in a circle around the fire ring, tell stories, share jokes, and howl at the moon…no really, this year we actually did howl…(you probably had to be there.)

It was here, surrounded by some of the most important men in my life and my two oldest boys that my surgeon delivered the news about the cancer.

Earlier that day I had received a phone message from my surgeon’s nurse saying that he wanted to talk to me…badly…When a surgeon gives out his pager number to a client, it is never a good sign.  A page was sent pronto, but nothing was heard back before a group of us started to float down the river on tubes.  I did my best to enjoy the waters, knowing instinctively that bad news about the growing bump on my neck was pending…and in this the beauty of the river, the heat of the day, and the sheer joy of my sons and nephews reveling in the ice cold water worked wonders on my soul.

When we got back to camp, one of my buddies Scott, who works at UW in the surgery center urged me to page Dr. Byrd again, and this time Dr. Byrd responded quickly.  Sitting around the camp fire, my brother Dewight and I listened on speakerphone as Byrd laid out the news.  I don’t remember much about the conversation, except Dr Byrd saying that his jaw dropped and hit the floor when he saw the report, so unexpected was it to him.  As the sunlight was slowly moving from the harshness of a triple digit afternoon to the comfortable warmth of a gentle evening, I went around to my friends and dropped the news.

On this trip, we take time out each morning and night to tell stories around the fire.  This year is the second year that one of my best friends Paul agreed to be the official storyteller for the event, and in this role he did not disappoint.  Friday night and Saturday morning he wove tales of adventure, courage, perseverance, and becoming a man, inspiring not only our sons, but equally the cigar puffing men who held the sacred space for the young ones.  Saturday afternoon, when the heat of the day prescribed a departure from axes, carving, slingshots, and the like, we all headed for the river.  While the older boys braved the rapids, the younger ones enjoyed slightly calmer waters, trying to catch small fish, digging in the mud, and at one point crossing the river with the help of the dads.

Much of that afternoon I was able to stand alone, out in the middle of the river, still paying attention to my boys near the shore, but at a distance.  A shallow spot offered itself to me, where the water only came up to my thigh and I could hold my ground against the current.  Under a fiery globe that threatened to set my hat on fire, I kept my feet, cooled by the liquid snow, and calmed by ever-moving waters.  I have little remembrance as to what I contemplated or felt that afternoon, but only that the river was up to task of meeting it all and gracefully carrying it downstream.  Later, my brother Dewight would comment on both listening in to the phone call and watching me be surrounded by the river.  I think he would have better words to describe that afternoon…but then, even the best words are impossibly blunt, crude, and inept.

It so happened that the waters were calling Paul away from our camp a bit earlier than normal, as he had to return to Seattle early Sunday morning for his grandson’s baptism.  Knowing this, I had prepared in advance a story to share to close out the trip around the final campfire of Sunday morning. 

No doubt it meant more to me than anyone else, likely a great deal more.  But that mattered little to me, for even as I was sure that the words only washed over the boys, leaving not much more than a subconscious imprint, they seemed then even as they do now, to be words ordained by the Word, and destined for that very moment.  For as the opening lines of the story poured out, I looked around the circle and saw uncles, godfathers, and mentors of my own boys.  A community of men looked back at me; men who I was lucky to consider friends and even luckier to have as elders to my boys.  And I saw my own boys in this story, whose combined personalities mirror much of the young boy’s in the story.

While I believe I’ll beat my cancer now, at that moment I wasn’t so sure, and knowing that there would be good men both present and back in Seattle to help my own boys, meant the world to me …and the images of my own boys, somehow embodying the role of the young Israel...let’s just say that there was plenty of transference and projection going on that morning…and yet… perhaps it was the rhythms of God resonating between a campfire story I had chosen, and the life I was living.

Here is the story, put to paper by Gerald Fierst, and with only a few slight modifications I inserted for my own purposes.  For those who don’t know, the Baal Shem Tov was a historical Jewish mystic (1698- 1760) who is considered to be the founder of Hasidic Judaism.  Where the legends of him end and the actual historical record begins, or where they intermix or separate, is unknown and trying to bifurcate fact from legend is missing the point in my mind.  As far as I’m concerned, the story below is true, regardless of whether it actually happened.  See for yourself:

When Eleazer lay dying, he called his young son Israel to him. "My child, the Evil One surrounds the world with darkness, dark clouds which stop our prayers. He is in our flesh and in our dreams. But so long as you remember the sacred name of God, he cannot inhabit you. You are safe."

And after the father died, all the men gathered around the boy: uncles and friends, teachers and elders.  The community of men took the young Israel, and they cared for him, and after a time of mourning they sent him to off school. But the boy could not stay with his head bowed down, sitting and reading. Instead, his eyes would lift up out of the window and over the fields to the line of trees where the forest began. The wind would sing to him - and when the teacher's back was turned, he would run..., run..., run..., out, out, out, into the open air, flying on the breeze, out into the trees, until the teacher would chase him, catch him, and bring him back to his desk.

One day, Israel heard the call of earth and sky and ran away, but now the teacher said, "Let him go."

And so it was that the boy lived by himself in the wild places, sleeping in mossy hollows, eating berries. He learned the language of the beasts and birds and became the friend of all living things. Sometimes he would stand in silence and listen to the stillness and then he could hear the earth singing a sweet song praising God who made us all.

Now the time came when Israel returned to the world of humankind. He was ten years old. He took the job of collecting the children on their way to school, knocking on their doors and bidding them come.

Then he would lead them through the grass, picking the flowers for garlands that they would weave into their hair. Singing and dancing, they would march through the forest, taking pine boughs as banners which they waved above their heads; until they came to an open meadow where they would stand quietly in a circle. There, in the silence, they could hear the singing of the earth praising God who did make all. And their hearts gave forth prayers which shot like arrows to the heavenly throne.

Hearing these beautiful chords, the Messiah rose up on one elbow and wondered, "Is it time then? Is it time to return to the world?"

And Satan, the Evil One, saw about to happen that which was not yet supposed to be. Then he went before God and said, "Let me strive against these children who would stop my evil designs." And God said, "Strive."

So Satan went down to the surface of the world. He tried to enlist the insects, beasts, and birds in his terrible design, but none of them would turn against the boy Israel who loved and was loved so well.

It happened, near the village where the children lived, that there was a woodsman who had been cursed with a terrible curse. This creature had been born without a soul. At night, when the moon shone bright, the woodsman would fall upon his hands and knees. Hair would grow all over him. His nose and teeth would grow long and his ears would come to a point. He would run on all fours and howl like a wolf. At dawn, the creature would fall under a bush, exhausted, and return to the shape of a man.

Here, Satan found him asleep. The Evil One reached into the poor woodsman's chest and plucked out his heart. Then, Satan took his own heart of evil and placed it in the body of the woodsman.

When Israel led the children into the fields, as they came to the line of trees, the monster appeared. the heart of evil had made him grow to a terrible size. All the children fainted or ran.

When their parents heard what had happened, they refused to let the children go again with the boy Israel. But Israel said to them, "It was only a wolf who ran from the trees. The creature is gone. Trust me." And he spoke with such purity that on the next day the parents again gave him their children.

In the morning, Israel collected the children and led them into the fields. "Do not fear," he said to them. "Whatever happens, remember the name of God and stand fast."

And so it was, as they reached the edge of the forest, that the monster appeared. Immense, shoulders stretching from horizon to horizon, smoke and fire coming from its mouth and nose, creating dark clouds which blotted out the sun. The children shook with fright, but they did not run.

And Israel marched forth toward the beast, not stopping until he had entered into the very being of the monster, until he reached the heart of evil. Then Israel reached forth and took that black heart, filled with all the envy and cruelty of the world, and placed it in his hand.

When it lay in the boy's palm, the heart quivered like a bird with a broken wing. Poor wounded beast that it was, Israel felt its pain and understood that all the darkness of that heart came from fear and self-loathing.

Israel pitied that heart and took it and laid it upon the earth which opened wide. And the heart fell deep, deep into the forgiving world. Then Israel led the children to school.

The fate of the boy Israel was to go out into the world where he became a great teacher called the Baal Shem Tov. The children, without him, stopped going into the forest. They became again like their parents, serious with eyes turned down into their work.

Ah, but we have heard the story and know the mystery that waits for all to see when our eyes rise up to field and tree and sky. Let us go then, let us go to where the flowers blow in the wind that rushes past the trees. Let us stand in the midst of the forest where the earth heals all pain. Let our hearts sing songs of joy, and let us stand silently while the world in sweetness praises God who made us all.

In the wake of this story I could write ten thousand words…but it is far better to simply be silent.

Wednesday, September 4, 2013

The wound is where the light enters...

I'm preparing to live
Believe it or not, desiring life is just as difficult as preparing to die. Hope is painful, it takes more courage than I sometimes have and it is easier to deal with either living or dying rather than being open to either.

A dear friend gave me great feedback on my aforementioned preparations for death: "F*** you Ned," he said with all the heart and love and determination and passion and pain that sometimes only cursing can touch.

He was right of course. His question to me at 2:30AM, while sitting around a campfire, haunted me.

"Do you want to live?"

I couldn't answer him at first. It was too holy a query to quickly respond with an offhanded, "Of course," and in my heart I wasn't sure of the answer.

Nothing do I rescind from what I've said: letting go of the need to be alive is an essential part of being fully alive. I also refuse to ignore the data and I refuse to live in fear. Facing death, allowing death to roll over me (to the levels my subconscious will permit) has been altogether positive, not negative, even as it is disorienting and disruptive.  It has been gift, not burden, a blessing, not a curse.

For me, wanting life out of a repulsion of death is not life at all.  Gripping too tightly to life and trying to avoid the alternative is to be dead already.  Not considering death, not looking at the statistics, not attempting to be open, is negative.

My dear friend understands.  He gets it.  “Ok” says he, “fine…” and yet “I want you to live…here and now and for many decades to come.  Call me a greedy bastard.”  J

That next morning he and I take the Porsche my dear friend Andi lent me and cruise around the Puget Sound, the top down, the wind blowing through my sunscreen-stiffened hair.  He tells me of a therapist who worked with clients who had aids, back when HIV was a death sentence.  The entire practice was built around helping them deal with death…until medicine caught up to the virus and neutered it.  Now a practice that helped peopled destined to die had to help dead-men-walking prepare to live again.  You know what? The most amazing thing happened…many of them couldn’t flip back to life.  The transition to death was easier than dealing with the new hope and even the reality of a long life being ahead of them. 

I understand.

Somewhere in the posture of “living with open hands”, one must not let go of passion.  Somewhere in being willing to die, one must not lose a strong will to be alive here as long as it is to be.

This is the work of being in tension, of being open to both and never foreclosing on either possibility.  Had I accepted too readily an early death from cancer?  What does it look like to fight for life not from fear of death but from raw desire?  What does it mean to burn for being alive here, not because of an unwillingness to move on, but from an awareness of how good life is here?

The truth is that ever since my mother passed in November of 2000, I’ve felt OK with my own eventual death, even if it came prematurely.  But as life continues, as relationships with kids, neighbors, family, with Jamie, deepen, there are more and more reasons to live each day.  It is a simple thing to want to live for your kids, but what I was being posited by my dear friend was would I like to live for me? for my own pleasure?  I didn't immediately know.

Hope is a four letter word. 
To desire life one must hope, and hope can be devastating.  A few days ago a client brought in a newspaper article he had printed off.  The headline referenced a team in Zurich that had cured melanoma.  The leader of this team of scientists had been a former student of my client’s wife, and he had been following his career with great interest.  My client is an MIT grad and a retired rocket scientist from a certain large aerospace firm…he is not one prone to flights of fancy.  My cloud lifted and all of a sudden I could see life stretching out decades into my future—I could hardly wait to get to my computer to read more.  But hope aborted and crashed quickly as I discovered that while indeed it looks like this young man has cured melanoma, his methods would only work at this point on people at the very earliest of stages…it had no bearing for me…and so the roller coaster of hope goes…and I’m choosing to stay on...

Finally the tears
This week for the first time in this experience, a flood of tears were unleashed.  I had been wondering where they were; they were welcome before this but had shyly remained inside biding their time.

There is a community where men’s tears are not allowed to touch the earth.  So holy are they, that when they seep up from the heart and brim in the eyes, the elders gather round with receptacles in hand.  As they flow down the cheeks, through the beard and start to crash towards mother earth, the elders catch them—not one is wasted.  More precious than gold, each drop is holy water to be used to baptize the uninitiated into manhood.

My tears landed in my oatmeal at Beth’s on highway 99, a dive of a breakfast joint famous for 12 egg omelets, pancakes the size of hubcaps, and stacks of bacon that must require the life of more than one pig.  Beth’s is somehow repelling and compelling at the same time.  They boast an eclectic clientele and like the proverbial car accident from which you can’t turn away, watching people dig with gusto into what must be 20,000 calorie breakfasts is both awesome and awful.  They don’t sell “chicken” but rather “fowl.”  I think they should strike “pork” from their menu and replace it with “swine.” 

There was a story that brought the tears on that morning…a specific act of kindness remembered and related to a buddy who was in town for the Husky game.  But it wasn’t the profundity of the tale that opened the spigots, it seems like it could have been anything—they were simply ready to come.  The next morning with Jamie they visited me in greater numbers—great shuddering sobs appearing with no warning; I received them with hospitality and gratitude, and only hid my face to shield River from seeing his dad lose it…he doesn’t need to see that happen…not now.  Hope is still too fragile for him to bear a storm, his ego isn’t yet strong enough to stand on its own…but he is getting there.

Do you want to live?
“These tears are a good sign,” my 2:30 am visitor later opined as he stirred the coals of the fire. “Greif is a companion of desire, but not of apathy.”  “Thank God,” I thought to myself (or did I say it aloud?)  I know I want to want to live, I desire to desire, I don’t want to silently slip too-willingly into the next world without a hearty fight to remain longer…but this derivative, this seedling of passion isn’t the same as the fully grown tree…
 
His question had hung in the air for what seemed like hours and we thankfully had changed the subject, though part of me was still mulling it over.  We began discussing his life, his dreams, his spiritual journey, his recent romance, his giddiness over the same, and it was in being in relationship with another person, and hearing their story—not just living in my own—when it came to me.  "Yes damn it! I want to live."  I want to live not just for my kids, for my calling, for my wife, for my neighbors, but for the sure joy of loving and being loved here and now. 

And I believe that I will.  I will live.

Three steps forward-two steps back
This week has not only ushered in tears and rekindled desire but more news as come.  I discovered that a fellow parent of one of my son’s classmates has melanoma in his brain.  Additionally a person I’ve gotten to know very well through business dealings over the last years has bladder cancer.  I’ve poured ashes on my head before, but this week all I could muster was a hearty cursing of this brokenness we call cancer.  “Fuck” falls short, but it is a start when said well.  We don’t have words big enough to do the job.  In some cultures they tear their clothes, they wail and yell, they live in ashes at such news.  Why we feel the need to put on a face is beyond me.  That this culture is so flat-lined, over-medicated, numbed out, and terrified of death saddens me.

It isn’t all bad news.  I also heard from a friend from my past who boldly emailed hope to me and to all my family who then proceeded to drink in her words like September rain.  A medical doctor back east, she has been at a conference and felt moved to go to a session that made no sense for her to attend, in the process missing a session that she actually really was supposed to have attended.  It was only after half the time was spent discussing melanoma and she then spoke with the presenter, a cancer researcher who it appears has options for me, that she saw that it made complete sense why she had trusted her intuition…
 
God bless the scientists who see the patterns that lay beyond the explicative powers of science, who trust that the One Who Holds Us All, the Logos, the DNA of everything, that this mysterious God can be counted on more than pure Reason…I’m at the beginning of looking into the options she has described, but it appears that some flights to distant cities to consult with even more doctors may be in the cards. 

A humble request
A few weeks back I wrote the first blog post of my life.  It was done so partly as a way of disseminating information and letting people who know me, know me deeper.  It was a way to speak to my community about life with cancer, about hope, pain, death, life, and everything in-between.  It has been used for more than these original aims.  People who have never met me, and people who have never met people who have met me, are reading.  This isn’t about me; I know that.  Likely dear readers you are here for many different reasons…Maybe it is the fascination of watching the car crash or a Beth’s customer swallow a Denver omelet, hopefully it is more.

In a culture where it isn’t customary for us to face death head on, for us to embrace our mortality as a gift, there are some ancient truths that need to be re-learned.  They are nothing new for sure, nothing that hasn’t been taught and lived out a million times before, but they are things that need to continually to be said and lived, especially in this culture.

So if you’re still with me, I would like you to consider sharing this blog, re-posting this blog, to “like” this blog, to send this blog to a friend or co-worker.  It won’t be because that person knows me, but because perhaps the gifts of cancer need to be known by more of us.  As cheesy as it sounds, I actually believe that you will be making some kind of difference by sharing a story of a sacred wound and the grace that is eclipsing it.

 
This being human is a guest house,
Every morning a new arrival

A joy, a depression, a meanness, some momentary awareness comes as an unexpected visitor.
           Welcome and entertain them all!

Even if they’re a crowd of sorrows, who violently sweep your house empty of its furniture,
Still treat each guest honorably.
He may be clearing you out for some new delight.

The dark thought, the shame, the malice,
Meet them at the door laughing, and invite them in.

Be grateful for whoever comes, because each has been sent as a guide from beyond.

-Rumi